Aktuell forsknings- og faglitteratur Vi har satt opp et utvalg bøker og artikler om utmattelse og om mestring av sykdom generelt. Noen er skrevet for allmennheten og andre for fagfolk. Generelt om utmattelse Berge, T., Dehli, L. & Fjerstad, E. (2014). Energityvene. Utmattelse i sykdom og hverdag. Oslo: Aschehoug. DeLuca, J. (red.). (2007). Fatigue as a window to the brain. London: MIT Press. Hewlett, S., Chalder, T., Choy, E. mfl. (2011). Fatigue in rheumatoid arthritis: time for a conceptual model. Rheumatology, 50, 1004 1006. Hewlett, S., Cocshott, Z., Byron, M. mfl. (2005). Patients perceptions of fatigue in rheumatoid arthritis: Overwhelming, uncontrollable, ignored. Arthritis & Rheumatism, 53, 697 702. Gjeldsvik, S. (2008). En vandring i ukjent landskap uten kart og kompass. Tidsskrift for Den norske legeforening, 128, 726. Hockey, R. (2013). The psychology of fatigue. Work, effort and control. Cambridge: Cambridge University Press. Lilleaas, U.-B. & Widerberg, K. (2001). Trøtthetens tid. Oslo: Pax Forlag. Nicassio, P.M., Ormseth, M.K., Custidio, M.R. mfl. (2012). A multidimensional model of fatigue in patients with rheumatoid arthritis. The Journal of Rheumatology, 39, 1807 1813. Norheim, K. B., Johnsson, G. & Omdal, R. (2011). Biological mechanisms of chronic fatigue. Rheumatology, 50, 1009 1018. Radbruch, L., Strasser, F., Elsner, F. mfl. (2008). Fatigue in palliative care patients an EABC approach. Palliative Medicine, 22, 13 32. Stebbings, S. & Treharne, G.J. (2010). Fatigue in rheumatic disease: an overview, International Journal of Rheumatology, 5, 487 502. Whitehead, L. (2009). The measurement of fatigue in chronic illness: a systematic review of unidimensional and multidimensional fatigue measures. Journal of Pain and Symptom Management, 37, 107 128. Generelt om en kognitiv tilnærming Berge, T. & Repål, A. (2010). Den indre samtalen. Lær deg kognitiv terapi. Oslo: Gyldendal 1
Berge, T. & Repål, A. (red.). (2015). Håndbok i kognitiv terapi. Oslo: Gyldendal Studier av psykologiske tilnærminger til utmattelse og andre sykdomsplager Astin, J. S., Beckner, W., Soeken, K., Hochberg, M.C. & Berman, B. (2002). Psychological Interventions for rheumatoid arthritis: A meta-analysis of randomised controlled trials. Arthritis and Rheumatism, 47, 291 302. Bastelaar, K.V., Cuijpers, P., Pouwer, F., Riper, H. & Snoek, F.J. (2011). Development and reach of a web-based cognitive behavioural therapy programme to reduce symptoms of depression and diabetes-specific distress. Patient Education and Counseling, 84, 49 55. Dures, E., Kitchen, K. & Almeida, C. (2012). They didn t tell us, the made us work it out ourselves. Patient perspectives of a cognitive-behavioral program for rheumatoid arthritis fatigue. Arthritis Care & Research, 64, 494 501. Hewlett, S., Ambler, N., Almeida, C. mfl. (2011). Self-management of fatigue in rheumatoid arthritis: a randomized controlled trial of group cognitive therapy. Annals of the Rheumatic Diseases, 70, 1060 1067. Hewlett, S., Knops, B. mfl. (2010). Reducing the impact of rheumatoid arthritis fatigue: a randomized controlled trial of cognitive behavioral therapy, Rheumatology, 49, 16. Grahari, S., Packer, T.L. & Passmore, A.E. (2009). Development, standardisation and pilot testing of an online fatigue self-management program. Disability and Rehabilitation, 31, 1762 1772. Kangas, M., Bovbjerg, D.H. & Montgomery, G.H. (2008). Cancer-related fatigue: A systematic and meta-analytic review of non-pharmacological therapies for cancer patients. Psychological Bulletin, 34, 700 741. Sharpe, L., Allard, S. & Sensky, T. (2008). Five-year followup a cognitive-behavioral intervention for patients with recently diagnosed rheumatoid arthritis: effects on health care utilization. Arthritis and Rheumatism, 59, 311 316. van Kessel, K., Moss-Morris, R., Willoughby, E. mfl. (2008). A randomized controlled trial of cognitive therapy for multiple sclerosis fatigue. Psychosomatic Medicine, 70, 205 213. White, P. D., Goldsmith, K. A., Johnson, A. L. mfl. (2011). Comparison of adaptive pacing therapy, cognitive behaviour therapy, graded exercise therapy, and specialist medical care for chronic fatigue syndrome (PACE): a randomised trial. Lancet, 377 (9768), 823 836. Zangi, H., Mowinckel, P. & Finset A. (2002). A mindfulness-based group intervention to reduce psychological distress and fatigue in patients with inflammatory rheumatic joint 2
diseases: a randomised controlled trial. Annals of the Rheumatic Diseases, 71, 911 917. Kognitiv atferdsterapi ved sykdom Berge, T. & Fjerstad, E. (2015). Vedvarende utmattelse. I: T. Berge & A. Repål (red.), Håndbok i kognitiv terapi. Oslo: Gyldendal Akademiske. Berge, T., Fjerstad, E., Hyldmo, I. & Lang, N. (2014). Kognitiv atferdsterapi ved somatisk sykdom. I: A.A. Dahl, T.F. Aarre & J.H. Loge (red.), Psykiske problemstillinger i somatisk medisin (s. 361 380). Oslo: Cappelen Dam. Fjerstad, E. (2010). Frisk og kronisk syk. Et psykologisk perspektiv på kronisk sykdom. Oslo: Gyldendal Frank, K. & Hanssen, K. T. (2013). Du ser så godt ut! Kronisk sykdom bak fasaden. Oslo: Gyldendal Manne, S.L. & Ostroff, J.S. (2008). Coping with breast cancer. A couples-focused group intervention. Oxford: Oxford University Press. Mohr, D. (2010). The stress and mood management program for individuals with multiple sclerosis. Oxford: Oxford University Press. Moorey, S. & Greer, S. (2012). Oxford guide to CBT for people with cancer (2. utg.). Oxford: Oxford University Press. Nezu, A.M., Nezu, C.M. Jain, D. (2005). The emotional wellness way to cardiac health. Oakland, CA: New Harbinger Publ. Nordgren, T., Fjerstad, E. & Havik O. (2014). Veiledet selvhjelp. I: A.A. Dahl, T.F. Aarre & J.H. Loge (red.), Psykiske reaksjoner ved somatisk sykdom (s. 426 441). Oslo: Cappelen Damm Penedo, F.J., Antoni, M.H. & Schneiderman, N. (2008). Cognitive-behavioral stress management for prostate cancer recovery. Oxford: Oxford University Press. Sage, N., Sowden, M., Chorlton, E. mfl. (2008). Cognitive behavioral therapy for chronic illness and palliative care. Chichester: Willey. Safren, S.A., Gonzalez, J.S. & Soroudi, N. (2008). Coping with chronic illness. A cognitivebehavioral therapy approach for adherence and depression. Oxford: Oxford University Press. Taylor, R.R. (2011). Cognitive behavioral-therapy for chronic illness and disability. New York: Springer. Langvarige smerter 3
Cole, F., Macdonald, H., Carus, C. & Howden-Leach, H. (2010). Overcoming chronic pain. A self-help guide using cognitive behavioural techniques. London: Robinson. Fjerstad, E. (2010). Et psykologisk perspektiv på smerte. I: E. Fjerstad, Frisk og kronisk syk. Et psykologisk perspektiv på kronisk sykdom (s. 85 99). Oslo: Gyldendal Dixon, K.E., Keefe, F.J., Scipo, C.D. mfl. (2007). Psychological interventions for arthritis pain management in adults: a meta-analysis. Health Psychology, 26, 241 50. Fors, E. A. (2012). Hva er smerte. Oslo: Universitetsforlaget. Fors, E.A. & Lunde, L.-H. (2015). Langvarige smerter. I: T. Berge & A. Repål (red.), Håndbok i kognitiv terapi. Oslo: Gyldendal Tuck, D.C. & Thorn, B.E. (2004). Cognitive therapy for chronic pain. New York: Guilford Press (F). Søvnproblemer Berge, T. & Pallesen, S. (2105). Søvnproblemer. I: T. Berge & A. Repål (red.), Håndbok i kognitiv terapi. Oslo: Gyldendal Bjorvatn, B. (2007). Bedre søvn. Bergen: Vigmostad og Bjørke. Perlis, M. L., Jungquist, C., Smith, M. T. & Posner, D. (2005). Cognitive behavioral treatment of insomnia. A session-by-session guide. New York: Springer. Vitello, M.V., Von Korf, M., Stepanski, E.J. mfl. (2002). Cognitive behavioral therapy for insomnia improves sleep and decreases pain in older adults with co-morbid insomnia and osteoarthritis. Journal of Clinical Sleep Medicin, 5, 355 362. Depresjon Berge, T. & Repål, A. (2013). Lykketyvene. Hvordan overkomme depresjon. Oslo: Aschehoug. Clarke, D.M. & Currie, K.C. (2009). Depression, anxiety and their relationship with chronic diseases: a review of the epidemiology, risk and treatment evidence. Medical Journal of Australia, 190, 7 Suppl.: S54 60. Creed, F. & Dickens, C. (2007). Depression in the medically ill. I: S. Steptoe (red.), Depression and physical illness (s. 3 18). Cambridge University Press. Andre behandlingstilnærminger ved revmatisk sykdom 4
Chauffier, K., Salliot, C., Berenbaum, F. & Sellam, J. (2012). Effect of biotherapies in rheumatoid arthritis: a systematic review of the literature and meta-analysis. Rheumatology, 51, 60 68. Dagfinrud, H., Kvien, T.K. & Hagen, K.B. (2005). The Cochrane review of physiotherapy interventions for ankylosing spondylitis. Journal of Rheumatology, 32, 1899 1906. Hauser, W., Klose, P., Langhorst, J., Moradi, B., Steinbach, M., Schiltenwolf, M. & Busch, A. (2010). Efficacy of different types of aerobic exercise in fibromyalgia syndrome: a systematic review and meta-analysis of randomised controlled trials. Arthritis Research and Therapy, 12 (3), R79. Murphy, S., Lyden, A., Smith, D., Dong, Q. & Koliba, J. (2010). Effects of a tailored activity pacing intervention on pain and fatigue for adults with osteoarthritis. The American Journal of Occupational Therapy, 64, 869 876. Neuberger, G.B. mfl. (1997). Effects on exercise on fatigue, aerobic fitness, and disease activity measures in persons with rheumatoid arthritis. Research in Nursing and Health, 20, 195 204. Familieliv og kronisk sykdom Alderfer, M.A. & Stanley, C.M. (2012). Health and illness in the context of the family. I: A. Baum, T.A. Revenson & J. Singer (red.), Handbook of health psychology (2. utg.; s. 493 516). New York: Psychology Press. Berge, T. & Falkum, E. (2013). Jobb og familie: balanse, berikelse eller konflikt? I: T. Berge & E. Falkum, Se mulighetene. Psykisk helse og arbeidsliv (s. 287 295). Oslo: Gyldendal Fjerstad, E. (2010). Pårørende å være den det ikke gjelder. I: E. Fjerstad, Frisk og kronisk syk. Et psykologisk perspektiv på kronisk sykdom (s. 193 206). Oslo: Gyldendal Fjerstad, E. & Stene, J. (2007). En gjest som aldri går. Å leve med kronisk sykdom i familien. Tidsskrift for Norsk Psykologforening, 44, 1249 1253. Fjerstad, E. & Berge, T. (2014). Når mor eller far har kronisk sykdom. Barn som pårørende. Rapport om Barn 2014, Voksne for barn. 5